• FY2026 Activities and Results Report Meeting of the Practical Research Project for Rare/Intractable Diseases

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First-come-first-served 100people

Date: Saturday, November 7, 1:00 p.m -3:30 p.m

Venue: Nihonbashi Life Science Building 201Conference Room

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The speakers and the title of the lecture are as follows.

  • Hisamitsu Hayashi, “From Basic Research to Pharmacy Approval: Development of New Treatment Methods for Progressive Familial Intestinal Bieloid Infertility”
  • Yoshitsugu Aoki, “Collaboration and Practice for the Treatment Development of Rare Diseases: Initiatives of the Japan Rare Disease Consortium”
  • Kaori Suzuki "The history of the family association of patients with super rare diseases - Rare but Not Alone -"
  • Kuni Ito “A new research and development model for the development of rare disease drugs using open innovation”
  • Yoshihiro Asano, “Beyond Gene Discovery: From the Diagnosis of Cardiomyopathy to Personalized Care and Novel Therapies”
  • Kenji Miki "To a small heart, a new treatment option - What the patient's cells taught me and the challenge to connect to gene therapy -"
  • Hirohisa Watanabe “Development of ATP feed-path target therapeutic drug aimed at improving the symptoms of Parkinson’s disease and modifying the pathophysiology”
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FY2026 Activities and Results Report Meeting Secretariat at Stage Inc.
Email : amed-nambyo2026@stage.ac
(Weekdays 9:00 a.m. - 5:00 p.m. except Saturdays, Sundays and holidays)

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